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KSN is happy to announce the recent creation of the Email Discussion Group. An email group (or mailing list) makes it easy for individuals with similar interests to stay in fairly regular contact with each other. As families affected by KS, we can use email to share our experiences, questions, answers and feelings that surround life with a child with KS. Sending a message to the list means sending it to a central email address which in turn disseminates the message to the private email boxes of all the members of the list. List members may then choose to respond to the original posting or to write a new message of their own to send to the list.
An email discussion group is often referred to as a virtual community. The potential for group participation is greater than in any other medium. That is why email lists are so popular. In a sense, belonging to an email list is like being in a big room (with good acoustics!) with all the people on the list. When one person talks, everyone else can hear. Those people then have the choice to respond or to continue listening. The mailing list is a closed and safe environment since all requests to subscribe to the list are monitored and must be approved. Only approved list members receive messages, and all list members are identifiable at the KSN_L information page.
All that is required for approval--aside from having some sort of association with KS, be it personal or professional--is a willingness to follow the few basic ground rules, such as . . .
So, without further adieu, you are cordially invited to join the KSN Email Discussion Group, KSN_L, which is hosted by ONElist--a web-based mailing list server. You can click on the link below to go to the KSN_L subscription page. We look forward to meeting you in our virtual community!
One good strategy for this last point is to always try to give your messages a "universal appeal." Even if responding to one individual's request or question, it is considered basic email-list etiquette to respond with the entire group in mind.
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