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- Netwerk Kabuki Syndroom. The Netwerk Kabuki Syndroom was originally started in The Netherlands by Jos and Els Vergouwen-Knapen. This link will take you to KSN's Dutch version of this website.
- Kabuki Syndrom Netzwerk. Having completed her thesis on Kabuki Syndrome, Melanie van Derme, a former speech pathologist student in Germany, has generously translated the KSN website for our German readers.
- Disorder Zone Archives: Kabuki Syndrome . From The Resource Foundation for Children With Challenges.
- Andy Faase. The Faase family in The Netherlands has a Web page devoted to their son, Andy.
- Jakob Yeager. Meet Jakob and read his mom's personal journal.
- Katelyn's Home Page. Read about Katelyn and see her online photo album.
- The Parente Twins - Lorenza & Paolina. Meet Lorenza & Paolina, identical twins with Kabuki.
- Cassandra Anne Akers. Read Cassie's father's thoughts and feelings about losing his beautiful little girl.
- Zachary Colton. Welcome to SAKKS - Supporting Aussie Kids with Kabuki Syndrome. A personal website dedicated to Zachary. His parents, Peta & Adrian, invite you to add your stories to their site.
- Lara. We welcome all our German families to meet Lara. Don't forget to sign the guestbook!
- Association Syndrome de Kabuki (ASK). We welcome all our French families to France's Kabuki support group website. It has been difficult to offer KSN's web pages in Canada's other official language and so in the meantime, we hope you will make use of France's pages!!
- Physical Characteristics. Toshinobu Ozeki from Japan has photographed various physical characteristics present in his daughter. A great visual!!
- Wonderful Movements. Another helpful addition from Toshinobu Ozeki from Japan. A selection of short video clips featuring the walking gait and movements of his daughter.
- Ananda Cunanan. Meet Ananda from the Phillippines. You will immediately recognize her beautiful Kabuki eyes!
- Tyler Montgomery. Meet and view photos of Tyler!
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- Family Village. This well-maintained site offers "information, resources, and communication opportunities on the Internet for persons with mental retardation and other disabilities, for their families, and for those that provide them services and support." Its Library includes many disability-related topics, including a good article on sensory integration.
- American Association on Mental Retardation. AAMR's website includes a list of books on different aspects of intellectual disabilities.
- Wide Smiles. An excellent cleft lip and palate resource. This site offers "support, inspiration, information and networking for families everywhere who may be dealing with the challenges associated with clefting." There are many useful resources and links, including a helpful section on feeding a child with this disability.
- Center for Effective Collaboration and Practice. This site is especially written for teachers dealing with children with problomatic behaviors but is also helpful for parents and others. Among the many topics discussed are functional behavior assessment, the need to isolate the problem behavior, and behavior intervention plans.
- Sensory Integration Resource Center. A comprehensive list of links to many sensory integration sites.
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- Pub Med offers an extensive searchable database of published journal articles in the field of Medicine. A useful Help section accompanies this highly sophisticated search engine. As well, the site features abstracts for many of the articles it references.
- Human Genome Project Information. Find out about the international effort to identify and catalogue all the estimated 80,000 human genes. This project has important ramifications for all genetic diseases, inlcuding Kabuki syndrome.
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- LD OnLine: The Interactive Guide to Learning Disabilities for Parents, Teachers and Children. This informative and fun site comes complete with a Kid Zone; a Bulletin Board for parents, teachers and students; an Ask the Expert forum; and First Person--"personal essays on first-hand experiences with the challenges of learning disabilities." The site also includes includes informative articles on how to make the most of the IEP (Individualized Education Program) process.
- The Council for Exceptional Children. This site features information on special education. It is especially geared toward teachers.
- Wrightslaw. Anyone who deals with IDEA, IEPs, FAPE, NCLB, and Special Education would benifit from this site. Parents, advocates, educators, and attorneys come to Wrightslaw for accurate, up-to-date information about special education law and advocacy for children with disabilities.
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