KSN MEMBERSHIP

 

One of the most important functions of KSN is to bring families together. Membership in KSN is a great way to meet other KS families, either online or in person. Membership gets you the following:
  1. The Kabuki Journal newsletter twice per year
    • The Kabuki Journal contains personal stories from families, a wonderful way to get aquainted with other families with similiar experiences! You will also find information articles on genetics, journal articles, education, and any other number of topics we wish to explore together.
  2. The Family Directory once per year (if you have chosen to be a part of this listing)
    • The Family Directory is a listing of families, including their contact information, some of the major health issues faced by their child, and any therapies, treatments, etc their child may be involved with. Due to high mailing costs, and to keep membership fees at a minimum, it is now only available via email. To be included in the Family Directory you must be a member of KSN. We would like to make the distinction, however, that by becoming a KSN member, you are not automatically included in the Family Directory. If it's your wish to be included in this listing, you will need to complete the online form or mail the printable version.
  3. Periodic updates from KSN on latest happenings
    • Periodic updates could include information on upcoming local family get-togethers, Kabuki research projects or any other information received by KSN that may be of immediate interest to families.

The cost of membership is $20 (Canadian or US funds). The fee is very low because it is intended only to defray the mailing costs that are incurred with the newsletter.

Becoming a member of KSN is easy. Just go to the online form page, print it, and send it in with your membership fee OR New!! email Margot and let her know you wish to pay via PayPal.

Remember, you will still have to fill out the additional information required if you want to be included in the Family Directory on this other form.


 
  New!!
  • A one-time Kabuki Family Membership fee of $20 (either Canadian or US funds) is now being charged to cover mailing costs.

Quick Links

  1. Visit this page to print the KSN Membership Application Form
    • After printing, mail it in to the address on the form along with your membership fee

  2. Email Margot and request to pay for membership via PayPal

  3. Visit this page to register for the Family Directory
    • You must be a member of KSN to be in the Family Directory

  4. Visit this page to view some sample entries in the Family Directory (They show what information the Directory inlcudes and why)

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Related Links || Professional Advisory Group || Bulletin Board || About KSN

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© 1998 - 2008 Kabuki Syndrome Network. Last updated 18 Nov 2007.
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